Patient Advocacy Summit 2020

November 12, 2020 10:30 AM - 3:00 PM

Online Conference, Link will be sent in advance of the event.

Add to Calendar 11/12/2020 10:30:00 AM 11/12/2020 3:00:00 PM Patient Advocacy Summit 2020

MassBio's Patient Advocacy Summit brings together the patient advocacy community to showcase best practices and cutting-edge examples of how life sciences companies can more fully incorporate the patient voice into the work they do—not just approaching regulatory applications or at commercialization, but throughout the drug development cycle.

The program includes panel discussions, case study presentations(spotlighting industry/patient partnerships), and an inspirational keynote address.

See sponsorship opportunities here.

NOTE: MassBio makes every effort to accommodate our entire community at each of our events. Please let us know at least 3 days in advance of the event if you require special accommodations, such as captioning.

Online Conference, Link will be sent in advance of the event.
President and CEO, National Alliance for Caregiving
At thirty-two, Grace was named the President/CEO of the National Alliance for Caregiving, after previous stints as the COO and the Director of Strategic Partnerships. In her work at NAC, Grace led the nation’s first national policy study of 1,400+ rare disease caregivers with Global Genes. She has supported two nationally representative studies on caregiving, Caregiving in the U.S. 2020 released this past May with AARP, and the previous version in 2015. She has led new policy research on families managing cancer, autoimmune disorders such as IBD, cancer, dementia, mental illness, and chronic disease. She has provided testimony to Congress on caregiving programs and provided policy analysts to national media outlets such as C-SPAN’s Washington Journal, the New York Times, and the Wall Street Journal. In addition to her role at NAC, Grace represents NAC and the United States on the Governing Board of the International Alliance for Carer Organizations and offers ex officio support for NAC’s role as Secretariat.

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