Add to Calendar 2/28/2019 8:45:00 AM 2/28/2019 12:30:00 PM 2019 Rare Disease Day The last day of February has been designated as Rare Disease Day in Massachusetts to call attention to the public health issues associated with rare diseases, which affect nearly 30 million Americans and countless others around the world. The event recognizes Rare Disease Day and the research being done in Massachusetts to treat and cure rare disease. Alone we are rare, together we are strong. Our agenda feature two panels with different points of view of the issue: a patient panel, which will discuss the struggles beyond diagnosis and treatment; and an industry panel, which will focus on how the biotech and pharma industry is going beyond treatment to healing the whole patient, as well as supporting the caregivers. Omni Parker House, 60 School St Boston MA 02108
Patient Advocacy Director, Pfizer
Mariah is the Patient Advocacy Director at Pfizer’s Rare Disease Research Unit in Cambridge, MA. Mariah’s 15 years of extensive experience leading innovative collaborations with advocacy associations and healthcare organizations has positively impacted the lives of patients and the broader Rare Disease community. She passionately ensures patient perspectives and insights are gathered and incorporated into the earliest stages of Rare Disease drug development to advance access to novel therapies. She has also held numerous commercial positions in the Alzheimer’s disease, cardiovascular, multiple sclerosis and psychiatric franchises across research, marketing and sales management. Mariah received a Bachelor of Science in Nursing form Worcester State College.

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