2021 Rare Disease Day

February 26, 2021 10:00 AM - 12:30 PM

Online Conference, Link will be sent in advance of the event.

Add to Calendar 2/26/2021 10:00:00 AM 2/26/2021 12:30:00 PM 2021 Rare Disease Day MassBio’s Rare Disease Day recognizes the research being done in Massachusetts to treat and cure rare disease. The last day of February has been designated as Rare Disease Day in Massachusetts to call attention to the public health issues associated with rare diseases, which affect nearly 30 million Americans and countless others around the world.

This year’s program will focus on how we can better address health inequity and racial disparities among the rare disease community. Attendees will hear an inspiring Possible Talk, an insightful panel of industry, physicians, patients/caregivers, and advocates, and a closing patient keynote. Ample networking time will be provided (virtually!).

Alone we are rare, together we are strong. 

To inquire about sponsorship opportunities, contact Laura Rudberg.

NOTE: MassBio makes every effort to accommodate our entire community at each of our events. Please let us know at least 3 days in advance of the event if you require special accommodations, such as captioning. Online Conference, Link will be sent in advance of the event.
Sickle Cell Patient & Social Media Manager, Sickle Cell Community Consortium
Shamonica Wiggins is a 31-year-old sickle cell warrior and a native of Dallas, TX. Although she has sickle cell SS, which is commonly referred to as the most critical form of the illness, she rarely allows it to get in the way of her chasing her dreams. This is evident in the work she did as creator and former CEO of the non-profit organization, #BoldLipsForSickleCell. Currently, Ms. Wiggins is the Social Media Manager for the Sickle Cell Community Consortium. Shamonica was awarded the 2018 National Sickle Cell Advocate of the Year by Sickle Cell 101. Ms. Wiggins is a trailblazer in the sickle cell community and strives to be a “voice of one, speaking for many.” When she's not busy fulfilling her passion of spreading sickle cell awareness you can find her on the sidelines of the basketball court cheering on her 9-year-old daughter Roree. Shamonica prides herself as a mother and her daughter is a big reason why she refuses to give up. She hopes that her advocacy work leads to a big breakthrough for the sickle cell community. Shamonica refuses to stop being a voice for her people until she sees the changes that sickle cell warriors so desperately need.

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