Patient Panel: How We Show and Don’t Show Our Rare Colors

(GMT-05:00) Eastern Time (US & Canada)
45 minutes
This year’s patient panel will focus on Rare Disease Patients’ experiences of Color, in keeping with Rarediseaseday.org theme this year of “show your color” our panelists will share how their differences play into their Rare Disease Journey.

Speakers

Carissa Juarez - Patient Ambassador, GBSCDA
Tim Bousum - Co-Chair, Parent Advisory Committee, Angelman Syndrome Foundation
Tony Frangie - Vice President, LSD & Endo, US Rare Disease Business Unit, Takeda
Tracy Antonelli - Beta Thalassemia Patient and Parent