The last day of February has been designated as Rare Disease Day in Massachusetts to call attention to the public health issues associated with rare diseases, which affect nearly 30 million Americans and countless others around the world. The event recognizes Rare Disease Day and the research being done in Massachusetts to treat and cure rare disease. Alone we are rare, together we are strong. Our agenda feature two panels with different points of view of the issue: a patient panel, which will discuss the struggles beyond diagnosis and treatment; and an industry panel, which will focus on how the biotech and pharma industry is going beyond treatment to healing the whole patient, as well as supporting the caregivers.
Session Title Start Time End Time
2/28/2019 8:45 AM 2/28/2019 9:15 AM
Welcome Remarks
2/28/2019 9:15 AM 2/28/2019 9:45 AM
Patient Panel: Supporting Patient Well-being Beyond Outcomes
2/28/2019 9:45 AM 2/28/2019 10:45 AM
Networking Break
2/28/2019 10:45 AM 2/28/2019 11:15 AM
Industry Panel: Fulfilling our Social Contract for the Whole Patient
2/28/2019 11:15 AM 2/28/2019 12:15 PM

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