2021 Rare Disease Day
February 26, 2021 10:00 AM - 12:30 PM
Online Conference, Link will be sent in advance of the event.
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2/26/2021 10:00:00 AM
2/26/2021 12:30:00 PM
2021 Rare Disease Day
MassBio’s Rare Disease Day recognizes the research being done in Massachusetts to treat and cure rare disease. The last day of February has been designated as Rare Disease Day in Massachusetts to call attention to the public health issues associated with rare diseases, which affect nearly 30 million Americans and countless others around the world.
This year’s program will focus on how we can better address health inequity and racial disparities among the rare disease community. Attendees will hear an inspiring Possible Talk, an insightful panel of industry, physicians, patients/caregivers, and advocates, and a closing patient keynote. Ample networking time will be provided (virtually!).
Alone we are rare, together we are strong.
To inquire about sponsorship opportunities, contact Laura Rudberg.
NOTE: MassBio makes every effort to accommodate our entire community at each of our events. Please let us know at least 3 days in advance of the event if you require special accommodations, such as captioning. Online Conference, Link will be sent in advance of the event.
This year’s program will focus on how we can better address health inequity and racial disparities among the rare disease community. Attendees will hear an inspiring Possible Talk, an insightful panel of industry, physicians, patients/caregivers, and advocates, and a closing patient keynote. Ample networking time will be provided (virtually!).
Alone we are rare, together we are strong.
To inquire about sponsorship opportunities, contact Laura Rudberg.
NOTE: MassBio makes every effort to accommodate our entire community at each of our events. Please let us know at least 3 days in advance of the event if you require special accommodations, such as captioning. Online Conference, Link will be sent in advance of the event.
Sr. Director, Head of Translational Sciences at Mitobridge, Inc., an Astellas Company
Dominique (Domi) Stickens, Ph.D, has 15 years of drug discovery and translational research experience. Prior to Mitobridge, he led and contributed to programs at Merck across drug discovery & development from early stages of basic research to clinical development. His drug discovery experience include multiple therapeutic areas such as autoimmune diseases and inflammation, immuno-oncology, sarcopenia, urology and hematological disorders. Domi initiated his career in healthcare during his academic research, which focused on rare diseases, principally disorders of dysregulated bone development. Connecting with patients and patient advocacy groups catalyzed a long-term passion and career commitment to the advancement of treatments for diseases with a high unmet medical need. Domi received his BS degree in Biology from Antwerp University, Belgium and his Ph.D. in developmental genetics from UTSW medical center, Dallas (TX). After his thesis research, he completed a postdoctoral fellowship with Zena Werb at UCSF, San Francisco (CA).
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