2022 Rare Disease Day

February 28, 2022 10:00 AM - 12:30 PM

MassBioHub & Virtual, 700 Technology Sq Fl 5 Cambridge MA 02139

Add to Calendar 2/28/2022 10:00:00 AM 2/28/2022 12:30:00 PM 2022 Rare Disease Day MassBio recognizes Rare Disease Day by highlighting the research to treat and cure rare diseases happening in Massachusetts. The last day of February has been designated as Rare Disease Day worldwide to raise awareness about the public health issues associated with rare diseases, which affect nearly 30 million Americans and countless others around the world.

This year’s program will focus on how we can better address health inequity and racial disparities among the rare disease community. Attendees will hear an inspiring Possible Talk, an insightful panel of industry, physicians, patients/caregivers, and advocates, along with a closing patient keynote. Ample networking time will be provided (virtually, too!).

Alone we are rare, together we are strong.® (This slogan is a registered trademark of the National Organization for Rare Disorders.)

To inquire about sponsorship opportunities, contact Laura Rudberg.

Please note that this will be a hybrid event, with a limited number of in-person attendees. In-person attendance is available on a first-come, first-served basis, and all additional registrants will be placed on a waitlist. All in-person attendees are required to be fully vaccinated and masks will be required in all common areas of the event space, except while eating or drinking.  

MassBio makes every effort to accommodate our entire community at each of our events. Please let us know at least 3 days in advance of the event if you require special accommodations, such as captioning. MassBioHub & Virtual, 700 Technology Sq Fl 5 Cambridge MA 02139
Chief Executive Officer, MassBio
In the role of CEO, Joe will manage MassBio’s federal affairs, state and municipal government relations, and will take the lead on initiatives to sustain Massachusetts’ economic competitiveness focusing on issues around infrastructure, workforce, and digital health. Prior to joining MassBio in September 2021, Joe served as the State Senator for the First Suffolk and Middlesex districts, representing his hometown of Winthrop; the Boston communities of East Boston, North End, Chinatown, Beacon Hill, Bay Village, and South End; the Cambridge neighborhoods of Cambridgeport, Riverside and MIT; and the City of Revere. While in the State Senate, Joe was the Chair of the Joint Committee on Transportation, Chair of the Senate’s Committee on Personnel and Administration, Chair of the Joint Committee on Housing, Vice Chair of Rules, and member of the Senate Ways and Means Committee, Senate Ethics Committee, Committee on Bonding, Capital Expenditures and State Assets, and the Committee on Financial Services. Before being elected to the state legislature in 2016, Joe practiced law specializing in criminal law in his private practice and as a public defender with Suffolk Lawyers for Justice. Since his early life, Boncore has been an active member in the Order Sons of Italy in America, he is currently the National Second Vice President. Boncore earned his bachelor’s degree in political science and government from Providence College in 2004 and received his juris doctorate from the Massachusetts School of Law. Joe resides in Winthrop with his wife Christine and twin sons John and Philip.

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