2022 Rare Disease Day

February 28, 2022 10:00 AM - 12:30 PM

MassBioHub & Virtual, 700 Technology Sq Fl 5 Cambridge MA 02139

Add to Calendar 2/28/2022 10:00:00 AM 2/28/2022 12:30:00 PM 2022 Rare Disease Day MassBio recognizes Rare Disease Day by highlighting the research to treat and cure rare diseases happening in Massachusetts. The last day of February has been designated as Rare Disease Day worldwide to raise awareness about the public health issues associated with rare diseases, which affect nearly 30 million Americans and countless others around the world.

This year’s program will focus on how we can better address health inequity and racial disparities among the rare disease community. Attendees will hear an inspiring Possible Talk, an insightful panel of industry, physicians, patients/caregivers, and advocates, along with a closing patient keynote. Ample networking time will be provided (virtually, too!).

Alone we are rare, together we are strong.® (This slogan is a registered trademark of the National Organization for Rare Disorders.)

To inquire about sponsorship opportunities, contact Laura Rudberg.

Please note that this will be a hybrid event, with a limited number of in-person attendees. In-person attendance is available on a first-come, first-served basis, and all additional registrants will be placed on a waitlist. All in-person attendees are required to be fully vaccinated and masks will be required in all common areas of the event space, except while eating or drinking.  

MassBio makes every effort to accommodate our entire community at each of our events. Please let us know at least 3 days in advance of the event if you require special accommodations, such as captioning. MassBioHub & Virtual, 700 Technology Sq Fl 5 Cambridge MA 02139
Founder and CEO of VITFriends
Valarie Molyneaux is the Founder and Chief Executive Officer of VITFriends, a Vitiligo support community of friends. Valarie founded VITFriends after her own diagnosis and finding no local support group. She is responsible for the overall executive management of VITFriends, including outreach, chapter development, brand development, strategic planning, fundraising, board development, program oversight and the organizational/team management. Some of Valarie’s other accomplishments include Sister-2-Sister Prayer’s Support Group Director, Blue Hills Bank’s Hometown Hero Award recipient, 2016 Inaugural US Capitol Steps Vitiligo Rally organizer, 2018 Flag flown over the U.S. Capitol recipient, Global Vitiligo Foundation committee member, and L’Oréal Paris/NY 2020 Woman of Worth candidate. A former bank officer, Valarie currently works in education and is a personal life coach. She holds a B.A. from the University of Massachusetts in Human Service and Early Childhood Education.

Brought to you by