2022 Rare Disease Day
February 28, 2022 10:00 AM - 12:30 PM
MassBioHub & Virtual, 700 Technology Sq Fl 5 Cambridge MA 02139
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2/28/2022 10:00:00 AM
2/28/2022 12:30:00 PM
2022 Rare Disease Day
MassBio recognizes Rare Disease Day by highlighting the research to treat and cure rare diseases happening in Massachusetts. The last day of February has been designated as Rare Disease Day worldwide to raise awareness about the public health issues associated with rare diseases, which affect nearly 30 million Americans and countless others around the world.
This year’s program will focus on how we can better address health inequity and racial disparities among the rare disease community. Attendees will hear an inspiring Possible Talk, an insightful panel of industry, physicians, patients/caregivers, and advocates, along with a closing patient keynote. Ample networking time will be provided (virtually, too!).
Alone we are rare, together we are strong.® (This slogan is a registered trademark of the National Organization for Rare Disorders.)
To inquire about sponsorship opportunities, contact Laura Rudberg.
Please note that this will be a hybrid event, with a limited number of in-person attendees. In-person attendance is available on a first-come, first-served basis, and all additional registrants will be placed on a waitlist. All in-person attendees are required to be fully vaccinated and masks will be required in all common areas of the event space, except while eating or drinking.
MassBio makes every effort to accommodate our entire community at each of our events. Please let us know at least 3 days in advance of the event if you require special accommodations, such as captioning. MassBioHub & Virtual, 700 Technology Sq Fl 5 Cambridge MA 02139
This year’s program will focus on how we can better address health inequity and racial disparities among the rare disease community. Attendees will hear an inspiring Possible Talk, an insightful panel of industry, physicians, patients/caregivers, and advocates, along with a closing patient keynote. Ample networking time will be provided (virtually, too!).
Alone we are rare, together we are strong.® (This slogan is a registered trademark of the National Organization for Rare Disorders.)
To inquire about sponsorship opportunities, contact Laura Rudberg.
Please note that this will be a hybrid event, with a limited number of in-person attendees. In-person attendance is available on a first-come, first-served basis, and all additional registrants will be placed on a waitlist. All in-person attendees are required to be fully vaccinated and masks will be required in all common areas of the event space, except while eating or drinking.
MassBio makes every effort to accommodate our entire community at each of our events. Please let us know at least 3 days in advance of the event if you require special accommodations, such as captioning. MassBioHub & Virtual, 700 Technology Sq Fl 5 Cambridge MA 02139
CEO & President | MassBio
Kendalle Burlin O’Connell is a seasoned and effective executive who has received wide acclaim for her leadership of MassBio, the world’s largest biopharma membership organization, where she drives the strategy to grow the industry and support member companies as CEO and president.
To better serve the entire life cycle of biopharma companies, Kendalle has expanded MassBio’s innovation offerings to include partnering and investor events, an entrepreneurial accelerator, and a network for founders and chief executives. As part of MassBio’s commitment to realizing a more diverse and equitable life sciences industry, Kendalle was the driving force behind the organization’s launch of the non-profit Bioversity and the opening of its first workforce training center in Dorchester where graduates are prepared for rewarding entry-level careers at local life sciences companies. Kendalle has been an outspoken advocate for the industry in policy debates about state government support for the expansion of the life sciences in Massachusetts, the federal government’s intervention into biopharma innovation, and efforts to improve the affordability and accessibility of life-changing medicines, just to name a few.
Kendalle has earned numerous accolades for her leadership, including top recognitions from Boston Magazine and the Boston Business Journal, and serves on the Boards of The Boston Foundation and the American Cancer Society, where she is Chair for the Eastern New England region, among others.
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