2022 Rare Disease Day

February 28, 2022 10:00 AM - 12:30 PM

MassBioHub & Virtual, 700 Technology Sq Fl 5 Cambridge MA 02139

Add to Calendar 2/28/2022 10:00:00 AM 2/28/2022 12:30:00 PM 2022 Rare Disease Day MassBio recognizes Rare Disease Day by highlighting the research to treat and cure rare diseases happening in Massachusetts. The last day of February has been designated as Rare Disease Day worldwide to raise awareness about the public health issues associated with rare diseases, which affect nearly 30 million Americans and countless others around the world.

This year’s program will focus on how we can better address health inequity and racial disparities among the rare disease community. Attendees will hear an inspiring Possible Talk, an insightful panel of industry, physicians, patients/caregivers, and advocates, along with a closing patient keynote. Ample networking time will be provided (virtually, too!).

Alone we are rare, together we are strong.® (This slogan is a registered trademark of the National Organization for Rare Disorders.)

To inquire about sponsorship opportunities, contact Laura Rudberg.

Please note that this will be a hybrid event, with a limited number of in-person attendees. In-person attendance is available on a first-come, first-served basis, and all additional registrants will be placed on a waitlist. All in-person attendees are required to be fully vaccinated and masks will be required in all common areas of the event space, except while eating or drinking.  

MassBio makes every effort to accommodate our entire community at each of our events. Please let us know at least 3 days in advance of the event if you require special accommodations, such as captioning. MassBioHub & Virtual, 700 Technology Sq Fl 5 Cambridge MA 02139
Founder | Nikitas Communications
Award winning former Boston TV news and business anchor Mike Nikitas led live coverage of countless major news events, including the Boston Marathon bombings, 9/11, and New Hampshire Presidential Primaries. He interviewed hundreds of major newsmakers and business leaders, and hosted numerous fundraisers, debates and conferences. Known for clarity and credibility, he brings these characteristics to the core of his work with clients. Nikitas is an adjunct professor of “Media Strategy and Skills,” teaching graduate students at the Carsey School of Public Policy at the University of New Hampshire, Durham. He has guest-lectured at Harvard, Northeastern and Boston University. He has a special interest in veteran’s issues and is the longtime emcee of the annual Massachusetts Veteran’s Day Ceremony. Nikitas appeared as a newscaster in two movies, including the hit film “Ted.” Nikitas is a five-time Emmy nominee as Outstanding Anchor in Boston, and has been inducted into the prestigious “Silver Circle” of the National Academy of Television Arts and Sciences.

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