Patient Advocacy Summit 2019

November 6, 2019 8:00 AM - 4:30 PM

Marriott Boston Cambridge, 50 Broadway, Cambridge, Massachusetts 02142 USA

Add to Calendar 11/6/2019 8:00:00 AM 11/6/2019 4:30:00 PM Patient Advocacy Summit 2019

MassBio's Patient Advocacy Summit brings together the patient advocacy community to showcase best practices and cutting-edge examples of how life sciences companies can more fully incorporate the patient voice into the work they do—not just approaching regulatory applications or at commercialization, but throughout the drug development cycle.

This year we'll explore competing views on what value therapies bring to various stakeholders, what a cure is worth to patients and society, how to improve the clinical trial experience for patients, and more. We will also have a frank discussion about patient access in the era of transformative therapies, and you’ll hear directly from patients on what this means to them.

The program includes panel discussions, case study presentations(spotlighting industry/patient partnerships), an inspirational keynote address, as well as a networking lunch and cocktail reception.

See sponsorship opportunities here, or contact Laura Rudberg.

Marriott Boston Cambridge, 50 Broadway, Cambridge, Massachusetts 02142 USA
Senior Director Payer Relations, National Hemophilia Foundation
Kollet is responsible for project leadership, analysis and the development of NHF’s healthcare payer education strategies, policies and programs, including the Comprehensive Care Sustainability Collaborative (CCSC). Prior to her tenure at NHF, Kollet served as the Executive Director of the Bleeding & Clotting Disorders Institute in Peoria IL, a federally recognized Hemophilia Treatment Center(HTC) of Excellence, where she developed and grew an inhouse specialty pharmacy program that became one of the larger programs in the country. Kollet has also served on the Hemophilia Alliance Executive Board of Directors, served as the chair of the national payer subcommittee and sat on the Illinois Hemophilia Advisory board. With hemophilia ranking #12 of 20 for highest cost catastrophic claims, #9 for reported high cost claims for stop loss carriers and #8 of 10 highest cost claims for jumbo employer sponsored health plans ; Kollet strongly believes that the stage is set for all parties who share in the cost risks associated with rare chronic disorders, to change their current practice of giving away their healthcare brainpower to those who might have experience with specialty pharmacy dispensation for these chronic rare diseases, without at least entering into dialogue with those that are the experts in managing this patient population.

Brought to you by