Patient Advocacy Summit 2020

November 12, 2020 10:30 AM - 3:00 PM

Online Conference, Link will be sent in advance of the event.

Add to Calendar 11/12/2020 10:30:00 AM 11/12/2020 3:00:00 PM Patient Advocacy Summit 2020

MassBio's Patient Advocacy Summit brings together the patient advocacy community to showcase best practices and cutting-edge examples of how life sciences companies can more fully incorporate the patient voice into the work they do—not just approaching regulatory applications or at commercialization, but throughout the drug development cycle.

The program includes panel discussions, case study presentations(spotlighting industry/patient partnerships), and an inspirational keynote address.

See sponsorship opportunities here.

NOTE: MassBio makes every effort to accommodate our entire community at each of our events. Please let us know at least 3 days in advance of the event if you require special accommodations, such as captioning.

Online Conference, Link will be sent in advance of the event.
Student, Patient and Patient Advocate, 4 Jake's Sake
Jake is a a 17 year old Senior at Hudson High School. He loves the stage and being a part of Drama Society at school, his most recent roll was Harry Bright in Mamma Mia. He is a “Czar" as a Drama Officer, collaborating with the other officers to strengthen the drama program and help plan the theatre season. He was in the National Junior Honor Society and has finished a Triathlon with both his Mom & Dad. Jake will be adding “author” to his resume with a children's book coming out later this year, and will be featured in a book about inspirational people. Jake appeared on Dr. Phil earlier this year, to show that with adversity you can still find the positive. You can find him at the host stand of a local restaurant (pre Covid) greeting the guests and getting them seated. Jake helps his family run The 4 Jake’s Sake Charitable Foundation, which helps others living with Duchenne make their homes accessible. He has spoken at many events about his life with Duchenne as a patient advocate. Despite living with Duchenne, Jake lives a positive and wonderful life. His motto is “Don’t live the diagnosis, live the life”.

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