Ensuring Equitable Access to New Gene Therapies

April 5, 2021 2:00 PM - 3:00 PM

Webinar, click "live-stream" button to view

Add to Calendar 4/5/2021 2:00:00 PM 4/5/2021 3:00:00 PM Ensuring Equitable Access to New Gene Therapies

While recent clinical trials of innovative, new gene therapies show incredible promise for patients who have faced a lifetime of unmet medical needs, the biggest challenge for these therapies is yet to come – ensuring equitable access.

A critical moment for this issue could be the development of new therapies for sickle cell disease, which affects approximately one in 365 Black Americans. What can the life sciences do to ensure that all patients have access to what could be life-changing medicines?

In this month’s Make Shift Happen, panelists from the gene therapy sector and patient advocacy space will discuss:

  • The current state of ED&I in therapeutic development
  • Taking a patient-centric approach to developing new gene therapies
  • Challenges and opportunities for improving therapeutic accessibility
Webinar, click "live-stream" button to view
Senior Director, Patient Advocacy & State Government Affairs, CRISPR Therapeutics
Sara leads, develops, and implements the company's strategy on all patient advocacy initiatives and various state government affairs programs. Patient advocacy is dedicated to helping to improve the well-being of patients, caregivers and families impacted by serious rare diseases. The strategy will focus on external engagement with multiple professional and patient advocacy organizations to continue to build and evolve CRISPR Therapeutics partnerships with these important groups and bringing the patient voice into drug development. In state government affairs, Sara will maintain a strong working relationship with legislators, national and state organizations and be a resource to them on industry issues. Creating coalitions with advocacy groups as well as associations. Working closely with trade associations and other industry leaders to affect legislative outcomes.