Austin is a 20 year old sophomore , currently working on a mechanical engineering degree at Bunker Hill Community College. In his free time, he enjoys playing power soccer with his team in weekly practice and in games around the United states, and downhill skiing with his family. Austin has been a participant in clinical trials, is a volunteer on Parent Project Muscular Dystrophy’s Adult Patient Advisory Committee, and a member of the review board for certified duchenne care centers. Whenever possible, he uses his voice to elevate our DMD community and increase awareness of the need for approved drug therapies. Austin spoke at the first ever advisory committee meeting for a duchenne drug approval, has testified at congressional briefings and met directly with the FDA representing the duchenne community. As the subject of documentaries, including, To The Edge Of The Sky, Rare In Common, and Gene Doctors, and the recipient of the 2016 Meyer- Whaley instrument of change award , Austin has been committed to using his life situation to raise awareness for those living with rare disease. Practically, he would like to be involved in technology that can make the lives of those affected easier, and help to measure benefit in clinical trial setting so more non-ambulant young men will be able to participate and give valuable data.