Add to Calendar 5/2/2019 8:00:00 AM 5/2/2019 10:00:00 AM Power of the Patient: How Patient Foundations Connect Academia, Industry & Regulators to Accelerate Clinical Development
Never before has the power of the patients been more evident in clinical research and development as evidenced by successful collaborations and regulatory trends. The process of therapeutic development has historically prioritized scientific concerns critical to the pathophysiology of disease indications (including pathways and mechanisms) in an effort to advance programs as efficiently as possible. Moreover, the organizations most involved in drug discovery and development in the past have largely been academia, biopharma and regulators. In the past decade, there is greater understanding that accelerating these efforts into the clinic can hit roadblocks due to reasons beyond scientific rationale – including an under appreciation for the key role that patient engagement can play towards successfully bringing safe and effective therapies reflective of the needs of patients who would most benefit. Incorporating the patient voice along with academia, industry and regulatory bodies can only strengthen this foundation of organizations already determined to address clinical unmet needs. Join our speakers and MassBio NonProfit Committee for an interactive and informative discussion on this important topic.
MassBio, 300 Technology Square 8th Fl, Cambridge, MA 02139
Associate Director of Operations & Scientific Outreach, Broad Cancer Program, Assoc Dir Count Me In
Corrie Painter is the associate director of operations and scientific outreach in the Cancer Program of the Broad Institute of MIT and Harvard. She leads the Angiosarcoma Project, a nationwide direct-to-patient genomics initiative aimed at generating the genomic landscape of this orphan disease, and she is working to build scientific resources to enable broad-scale rare cancer research across many indications. A trained cancer researcher with a Ph.D. in biochemistry, Painter serves as the associate director of Count Me In, which launches patient-driven research projects across multiple cancer types. In this role, she partners with advocacy groups and engages patients with metastatic breast cancer, angiosarcoma, and other cancers through social media in order to carry out the Metastatic Breast Cancer Project, the Angiosarcoma Project, and other patient-driven genomic initiatives where patients can consent online to donate their stored tumor samples, saliva samples, medical records, and their voices in order to directly accelerate the pace of discovery. These efforts can be followed on Twitter @MBC_project, @ASCaProject, and @Corrie_Painter, and on Facebook, the Metastatic Breast Cancer Project and the Angiosarcoma Project Working Group. Prior to joining the Broad Institute in 2015, Painter was vice president and cofounder of Angiosarcoma Awareness Inc., a nonprofit devoted to fostering a collaborative atmosphere between researchers in order to generate data and reagents that can be shared by the sarcoma community as a whole. She continues in this role alongside her work at the Broad Institute. Painter obtained her Ph.D. in biochemistry from the University of Massachusetts Medical School and completed her postdoc in cancer immunology at UMass Medical School’s Cancer Research Institute.