Patient Advocacy Summit 2019

November 6, 2019 8:00 AM - 4:30 PM

Marriott Boston Cambridge, 50 Broadway, Cambridge, Massachusetts 02142 USA

Add to Calendar 11/6/2019 8:00:00 AM 11/6/2019 4:30:00 PM Patient Advocacy Summit 2019

MassBio's Patient Advocacy Summit brings together the patient advocacy community to showcase best practices and cutting-edge examples of how life sciences companies can more fully incorporate the patient voice into the work they do—not just approaching regulatory applications or at commercialization, but throughout the drug development cycle.

This year we'll explore competing views on what value therapies bring to various stakeholders, what a cure is worth to patients and society, how to improve the clinical trial experience for patients, and more. We will also have a frank discussion about patient access in the era of transformative therapies, and you’ll hear directly from patients on what this means to them.

The program includes panel discussions, case study presentations(spotlighting industry/patient partnerships), an inspirational keynote address, as well as a networking lunch and cocktail reception.

See sponsorship opportunities here, or contact Laura Rudberg.

 Marriott Boston Cambridge, 50 Broadway, Cambridge, Massachusetts 02142 USA
Beta Thalassemia Patient and Parent
Tracy Antonelli is a graduate of Simmons College and the Boston University School of Public Health. Tracy was a clinical researcher at New England Research Institutes and Boston Children’s Hospital. She contributed to numerous groundbreaking studies, including the Stroke Prevention Trial in Sickle Cell Anemia. Tracy’s work has been published in The New England Journal of Medicine. Tracy became a stay at home Mom in 2012, when she and husband Patrick Mooty adopted their first daughter (Emmie) from China. They have since adopted daughters Rosie and Frannie from China. Tracy, Emmie, Rosie and Frannie have transfusion-dependent thalassemia. All of them need blood transfusions every 3 weeks and daily chelation therapy. Tracy is a Board Member for the Cooley’s Anemia Foundation and a frequent patient speaker for Harvard Medical School. She advocates for blood donation and volunteers for Boston Children’s Hospital. Emmie, Rosie and Frannie are Children’s Miracle Network Hospitals Champions for 2022. While living with a chronic blood disorder is a big part of their lives, they are an active and fun-loving family, thriving with thalassemia.

Brought to you by