Add to Calendar 10/1/2021 11:00:00 AM 10/1/2021 4:00:00 PM Patient Advocacy Summit 2021 This event is now virtual. MassBio's Patient Advocacy Summit brings together the patient advocacy community to showcase best practices and cutting-edge examples of how life sciences companies can more fully incorporate the patient voice into the work they do—not just approaching regulatory applications or at commercialization, but throughout the drug development cycle.

The program includes opening and closing keynote addresses, a panel discussion, and a professional development workshop for Patient Advocates.

MassBio makes every effort to accommodate our entire community at each of our events. Please let us know at least 3 days in advance of the event if you require special accommodations, such as captioning.
Virtual,
Senior Director Patient Advocacy and Engagement, Encoded Therapeutics Inc.
Jennifer Helfer is working within the advocacy community to positively disrupt the healthcare system to create access, transparency, and education so that gene therapy can become available to all those who can benefit. Jen joined bluebird bio in December of 2015. As part of the Patient Advocacy team, Jen serves as a conduit to patient advocates and advocacy organizations. The Patient Advocacy team is responsible for building and sustaining trusting relationships and collaborations with key stakeholders around shared goals to address patients’ and their families’ needs, as well as facilitate the integration of patient and caregiver perspective throughout the nest to inform decisions made at bluebird bio. Before joining bluebird bio, Jennifer was Associate Director of Scientific Operations at the National Brain Tumor Society, the largest nonprofit organization dedicated to the brain tumor community in the United States. Prior to finding her passion in advocacy, Jennifer engaged in basic research at Boston University Medical Center. Jennifer received a B.A. in Psychology from the University of North Carolina Wilmington, a M.A. in Behavioral Neuroscience from the University of Delaware, and a PhD in Biology, Neuroscience, from the University of Victoria.

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