2020 Rare Disease Day

February 28, 2020 9:30 AM - 2:00 PM

Omni Parker House, 60 School St Boston MA 02108

Add to Calendar 2/28/2020 9:30:00 AM 2/28/2020 2:00:00 PM 2020 Rare Disease Day The last day of February has been designated as Rare Disease Day in Massachusetts to call attention to the public health issues associated with rare diseases, which affect nearly 30 million Americans and countless others around the world. The event recognizes Rare Disease Day and the research being done in Massachusetts to treat and cure rare disease.

This year’s agenda will feature two panels: one from the patient perspective on how they’ve turned their diagnoses into their life’s work, finding empowerment through advocacy and action; and one from the industry’s perspective on how researchers and providers are not only tailoring a therapy for a specific patient but also the entire patient experience, and how this outlook has shaped their careers.

Alone we are rare, together we are strong. 

To inquire about sponsorship opportunities, contact Laura Rudberg.
  Omni Parker House, 60 School St Boston MA 02108
Chief Experience Officer
As Chief Experience Officer at Cambridge BioMarketing, Annemarie designs personalized omnichannel experiences for healthcare providers and patients with rare diseases. She has been instrumental in a number of rare disease product launches and led the development of CB’s predictive analytics and precision targeting platform. Using this proprietary approach, she helps clients find their target HCPs and develop individualized campaigns to reach them. She brings empathy and a strong passion for patients into everything she does, which led to her role in producing the Rare in Common documentary and podcast.

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