Patient Advocacy Summit 2019

November 6, 2019 8:00 AM - 4:30 PM

Marriott Boston Cambridge, 50 Broadway, Cambridge, Massachusetts 02142 USA

Add to Calendar 11/6/2019 8:00:00 AM 11/6/2019 4:30:00 PM Patient Advocacy Summit 2019

MassBio's Patient Advocacy Summit brings together the patient advocacy community to showcase best practices and cutting-edge examples of how life sciences companies can more fully incorporate the patient voice into the work they do—not just approaching regulatory applications or at commercialization, but throughout the drug development cycle.

This year we'll explore competing views on what value therapies bring to various stakeholders, what a cure is worth to patients and society, how to improve the clinical trial experience for patients, and more. We will also have a frank discussion about patient access in the era of transformative therapies, and you’ll hear directly from patients on what this means to them.

The program includes panel discussions, case study presentations(spotlighting industry/patient partnerships), an inspirational keynote address, as well as a networking lunch and cocktail reception.

See sponsorship opportunities here, or contact Laura Rudberg.

Marriott Boston Cambridge, 50 Broadway, Cambridge, Massachusetts 02142 USA
President, Project Alive
Dr. Kim Stephens is the president of Project Alive, a nonprofit organization that is a powerful voice for children and adults with Hunter Syndrome, bringing together families and advocates with researchers, industry, and regulators. Having a son with Hunter Syndrome herself, this is also a personal mission for Kim. She frequently speaks as a rare disease advocate at conferences and events and serves as a mentor and resource for newly-diagnosed families. Kim is also the founder of Inclusive Thinking – a consulting company dedicated to increasing diversity and inclusion through research, education, and strategic planning. Before founding Inclusive Thinking, she had a twenty-year career with IBM, most recently as the Global Diversity & Inclusion Communication and Education Lead. She has spoken at conferences around the world and conducted workshops on unconscious bias, cultural awareness, women's leadership, accessibility and other topics. In addition, Kim is an Associate Professor at Lincoln Memorial University teaching management and leadership in the MBA program. Kim earned her doctorate in Business from Georgia State University and focused her dissertation on implicit bias and the role of transformational conversation and social identity on behavioral change.

Brought to you by