Co-Founder, Our Odyssey
Seth is a patient advocate and motivational speaker who is passionate about bringing his personal experience to better support the health community. He has over 10 years of fundraising, advocacy, and volunteer experience within the health space. His passion is driven by his mother’s 17-year battle with the rare, genetic disease known as Huntington’s Disease (HD). At the age of 20, Seth also tested positive for the disease and is a gene carrier. Rather than dwelling on these results, he decided to use them as motivation to fight back and get more involved within the community.
In 2019 he co-founded the nonprofit, Our Odyssey, to connect young adults in the rare and chronic communities with social and emotional support. In addition, he also sits on the Board of Trustees for the Huntington’s Disease Youth Organization (HDYO) and works professionally as the Patient Engagement Manager for Inspire.