Host, Openly Rare Podcast
Paul Kidwell is a Boston-based, independent public relations/patient advocacy consultant providing media relations and patient engagement support for biopharmaceutical companies, and a rare disease podcaster.
Paul has also been a Parkinson’s care partner since 2007. He regularly presents his caregiving story to industry and patient audiences.
Paul has more than 20 years of corporate and agency communications experience within the life science sector. During this time Paul has provided integrated public relations support for product launches, FDA approvals, national and international media campaigns, patient advocacy programs, supported major industry conferences, medical meetings and trade shows, and developed media strategies for the placement of stories in global top tier business and trade media.
Paul has been involved in strategic programs with a focus on media and analyst outreach, event support, internal communications and collateral development for clients in many key therapeutic areas, include: oncology, central nervous system, autoimmune disease, personalized medicine and many rare disease categories. He has created and implemented successful media relations and advocacy communications campaigns directed at business and scientific trade press, enabling his clients to achieve a higher level of visibility among potential investors and business partner audiences.
Paul’s patient advocacy experience is extensive and for over a decade he has developed and supported patient engagement programs for biotech companies that includes patient ambassador programs, patient/caregiver/oncology nurse leadership councils, as well as patient storytelling. In 2013, Paul was part of the creators of the Patient Advocacy Summit in conjunction with MassBio; which is an event that focuses on the intersection of patient advocacy and the biotech industry, and features keynote presentations, panel discussions, case studies, and live patient storytelling. Paul also hosts the podcast