Ensuring Equitable Access to New Gene Therapies

April 5, 2021 2:00 PM - 3:00 PM

Webinar, click "live-stream" button to view

Add to Calendar 4/5/2021 2:00:00 PM 4/5/2021 3:00:00 PM Ensuring Equitable Access to New Gene Therapies

While recent clinical trials of innovative, new gene therapies show incredible promise for patients who have faced a lifetime of unmet medical needs, the biggest challenge for these therapies is yet to come – ensuring equitable access.

A critical moment for this issue could be the development of new therapies for sickle cell disease, which affects approximately one in 365 Black Americans. What can the life sciences do to ensure that all patients have access to what could be life-changing medicines?

In this month’s Make Shift Happen, panelists from the gene therapy sector and patient advocacy space will discuss:

  • The current state of ED&I in therapeutic development
  • Taking a patient-centric approach to developing new gene therapies
  • Challenges and opportunities for improving therapeutic accessibility
Webinar, click "live-stream" button to view
Founding Director, New England Sickle Cell Institute; Director, Connecticut Bleeding Disorders
Biree Andemariam, M.D. received her undergraduate degree in molecular biology and African studies from Princeton University and her medical degree from Tufts University School of Medicine, graduating with research honors. She completed her medical training at New York Presbyterian Hospital–Cornell University. She is an Associate Professor of Medicine at the University of Connecticut in the Division of Hematology/Oncology, Founding Director of the New England Sickle Cell Institute (NESCI), and Director of the Connecticut Bleeding Disorders Center. Dr. Andemariam joined UConn in 2007 as a physician-investigator and established the region’s only adult sickle cell disease (SCD) program. NESCI’s mission is to provide a medical home for adults with SCD as well as a transition destination for children with SCD. In addition to treating over 300 adults with SCD, the center is also home to numerous clinical and translational research studies. Dr. Andemariam is the immediate-past Chief Medical Officer of the Sickle Cell Disease Association of America, Inc and serves now as the Vice Chair of the Board of Directors. She chaired an international committee of experts in the development of guidelines on managing patients with SCD during the COVID pandemic.