Jamie Sullivan recently joined the EveryLife Foundation for Rare Diseases as the Director of Public Policy after a spending 15 years with the Alpha-1 and COPD Foundations. Jamie’s work has focused on achieving patient-centered federal, state and regulatory policy changes in the areas of health appropriations, public health infrastructure and access to care. In her role at the COPD Foundation, Jamie also focused on building programs to engage and train patient advocates as well as advocating for the robust inclusion of patient and caregiver perspectives in all aspects of treatment development and review. Prior to joining the COPD Foundation, Jamie supported the research and clinical programs of the Alpha-Foundation. She obtained her master’s in public health policy and management at the Florida International University.