As Head of Patient Advocacy, Stuart is responsible for advocacy strategy and community engagement globally across the Chiesi rare disease portfolio. He is committed to empowering those impacted by rare diseases by building trusted partnerships with them and their communities. Stuart has over 25 years of global advocacy experience, including roles as Global Director of Public Affairs & Patient Advocacy for rare blood disorders at Sanofi Genzyme and leading Global Patient Advocacy for Bioverativ Therapeutics’ precommercial rare disease pipeline. In addition, Stuart is the Cofounder and Director of the Sanfilippo Research Foundation—a nonprofit dedicated to research—in Sanfilippo Syndrome/MPS III, an ultra-rare inherited lysosomal storage disorder that affected his son Benjamin. Stuart is no stranger to the personal impact rare diseases can have on individuals and their loved ones. That is why he also serves on advisory boards and is an active member of numerous NGO, industry, and governmental rare disease groups and associations.