Patient Advocacy Summit 2019

November 6, 2019 8:00 AM - 4:30 PM

Marriott Boston Cambridge, 50 Broadway, Cambridge, Massachusetts 02142 USA

Add to Calendar 11/6/2019 8:00:00 AM 11/6/2019 4:30:00 PM Patient Advocacy Summit 2019

MassBio's Patient Advocacy Summit brings together the patient advocacy community to showcase best practices and cutting-edge examples of how life sciences companies can more fully incorporate the patient voice into the work they do—not just approaching regulatory applications or at commercialization, but throughout the drug development cycle.

This year we'll explore competing views on what value therapies bring to various stakeholders, what a cure is worth to patients and society, how to improve the clinical trial experience for patients, and more. We will also have a frank discussion about patient access in the era of transformative therapies, and you’ll hear directly from patients on what this means to them.

The program includes panel discussions, case study presentations(spotlighting industry/patient partnerships), an inspirational keynote address, as well as a networking lunch and cocktail reception.

See sponsorship opportunities here, or contact Laura Rudberg.

 Marriott Boston Cambridge, 50 Broadway, Cambridge, Massachusetts 02142 USA
Owner at nCeptive, Member of Massachusetts Rare Disease Advisory Council
Glenda was diagnosed with myasthenia gravis (MG) in 2013. In 2014, she became an active volunteer member of the New England Myasthenia Gravis Support Group and continues to be an advocate for the MG community. Glenda is the New England MG Support Leader, is on the governor of Massachusetts Rare Disease Advisory Council and is a patient voice on three pharmaceutical companies doing research in MG. Glenda is a strong MG advocate, sharing her story as guest speaker at pharmaceutical companies’ events, the MGFA 2023 National Patient Conference, the 2021 American Association of Neuromuscular & Electrodiagnostic Medica (AANEM) to name a few. Her MG story has been featured in various newspapers, magazines, social media outlets and talk shows, including the Boston Globe 2023 and Biotech Week, Scripps News, Authority Magazine, and the MetroWest Daily News. Glenda is also a strong patient advocate. She is the co-leader of the Beth Israel Deaconess Medical Center Patient and Family Advisory Council co-leader. Glenda enjoys working with elderly and disable individuals by helping them with their day-to-day finances as a Daily Money Manager. She enjoys traveling, swimming, snow shoeing and entertaining family and friends.

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