Lunch Workshop: A Stakeholder-Driven Approach to Patient Advocacy
85 minutes
In this interactive workshop, we’ll explore how a group of stakeholders within the Duchenne muscular dystrophy (DMD) community approaches its work and what we can learn from their successes and failures to apply to other disease areas. We’ll hear from an industry CEO, a patient, a patient advocate, and a researcher. We will then split into smaller groups to discuss before coming back together to report our findings.
Speakers
Ed Kaye - CEO, Stoke Therapeutics
Han C. Phan MD - Pediatric Neurologist & Associate Professor, University of Alabama at Birmingham
Jake Marrazzo - Student, Patient and Patient Advocate, 4 Jake's Sake
Jenn McNary - Co-Founder and Principal of Canary Advisors