45 minutes
Receiving a diagnosis for a rare disease is a devastating and life-changing event. Hear how these patients have turned their diagnoses into their life’s work, finding empowerment through advocacy and action.

Speakers

Cheryl Schwartz - Head, Hematology and Rare Disease, Takeda Pharmaceuticals
Chris Anselmo - Patient Advocate, LGMD2B, Muscular Dystrophy Association
Lexi Pappas - Lexi Pappas, Advocate, FSHD
Seth Rotberg - Co-Founder, Our Odyssey
Shauna Sperou - Patient Speaker