|Session Title||Start Time||End Time|
Coffee and Networking
||2/28/2020 9:30 AM||2/28/2020 10:00 AM|
||2/28/2020 10:00 AM||2/28/2020 10:30 AM|
Patient Perspectives: Diagnosis to Empowerment
Receiving a diagnosis for a rare disease is a devastating and life-changing event. Hear how these patients have turned their diagnoses into their life’s work, finding empowerment through advocacy and action.
|2/28/2020 10:30 AM||2/28/2020 11:15 AM|
||2/28/2020 11:15 AM||2/28/2020 11:45 AM|
Industry Perspectives: Working with Zebras One Stripe at a Time
Biopharma companies are using unique approaches to treating rare disease, realizing that each case is different from another. Hear how researchers and providers are not only tailoring a therapy for a specific patient but also the entire patient experience, and how this outlook has shaped their careers.
|2/28/2020 11:45 AM||2/28/2020 12:30 PM|