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| Session Title | Start Time | End Time |
|---|---|---|
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Coffee and Networking
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2/28/2020 9:30 AM | 2/28/2020 10:00 AM |
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Welcome
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2/28/2020 10:00 AM | 2/28/2020 10:30 AM |
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Patient Perspectives: Diagnosis to Empowerment
Receiving a diagnosis for a rare disease is a devastating and life-changing event. Hear how these patients have turned their diagnoses into their life’s work, finding empowerment through advocacy and action. |
2/28/2020 10:30 AM | 2/28/2020 11:15 AM |
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Networking Break
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2/28/2020 11:15 AM | 2/28/2020 11:45 AM |
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Industry Perspectives: Working with Zebras One Stripe at a Time
Biopharma companies are using unique approaches to treating rare disease, realizing that each case is different from another. Hear how researchers and providers are not only tailoring a therapy for a specific patient but also the entire patient experience, and how this outlook has shaped their careers. |
2/28/2020 11:45 AM | 2/28/2020 12:30 PM |
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Pledge4Rare Rare Disease Day 5K Run and 1 Mile Walk on Boston Common
For the fourth consecutive year, Sanofi Genzyme invites the Mass biotech community to join in a Rare Disease Day 5K Run/1 Mile Walk on the Boston Common. Register for the event at www.Pledge4Rare.com |
2/28/2020 12:45 PM | 2/28/2020 2:00 PM |