2022 Rare Disease Day

February 28, 2022 10:00 AM - 12:30 PM

MassBioHub & Virtual, 700 Technology Sq Fl 5 Cambridge MA 02139

Add to Calendar 2/28/2022 10:00:00 AM 2/28/2022 12:30:00 PM 2022 Rare Disease Day MassBio recognizes Rare Disease Day by highlighting the research to treat and cure rare diseases happening in Massachusetts. The last day of February has been designated as Rare Disease Day worldwide to raise awareness about the public health issues associated with rare diseases, which affect nearly 30 million Americans and countless others around the world.

This year’s program will focus on how we can better address health inequity and racial disparities among the rare disease community. Attendees will hear an inspiring Possible Talk, an insightful panel of industry, physicians, patients/caregivers, and advocates, along with a closing patient keynote. Ample networking time will be provided (virtually, too!).

Alone we are rare, together we are strong.® (This slogan is a registered trademark of the National Organization for Rare Disorders.)

To inquire about sponsorship opportunities, contact Laura Rudberg.

Please note that this will be a hybrid event, with a limited number of in-person attendees. In-person attendance is available on a first-come, first-served basis, and all additional registrants will be placed on a waitlist. All in-person attendees are required to be fully vaccinated and masks will be required in all common areas of the event space, except while eating or drinking.  

MassBio makes every effort to accommodate our entire community at each of our events. Please let us know at least 3 days in advance of the event if you require special accommodations, such as captioning. MassBioHub & Virtual, 700 Technology Sq Fl 5 Cambridge MA 02139
Session Title Start Time End Time
Registration & Coffee
2/28/2022 9:30 AM 2/28/2022 10:00 AM
Welcome Remarks
2/28/2022 10:00 AM 2/28/2022 10:15 AM
Patient Panel: How We Show and Don’t Show Our Rare Colors
2/28/2022 10:15 AM 2/28/2022 11:00 AM
Break
2/28/2022 11:00 AM 2/28/2022 11:15 AM
Possible Talk: More Than Our Skin
2/28/2022 11:15 AM 2/28/2022 11:30 AM
Industry Panel Expanding the Rare Disease View
2/28/2022 11:30 AM 2/28/2022 12:15 PM
Closing Remarks
2/28/2022 12:15 PM 2/28/2022 12:30 PM

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